Hearted Youtube comments on Chubbyemu (@chubbyemu) channel.

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  386. As someone with PCOS, it was really interesting to learn so much about my condition. This was definitely an extreme case of PCOS though, it’s actually a pretty common condition affecting 1 in 10 women. The most common symptoms of PCOS is acne, irregular menstruation cycle, excessive hair growth and weight gain, all of which I experienced. I was always overweight, my menstruation was irregular and extremely painful and I struggled with severe acne. Even my parents did not bother about my weight gain saying that I was at a growing stage of my life and that I needed to eat in order to grow. They brushed off my irregular periods and extreme cramps, I would literally be crying and rolling on the bed because of my pain but my mum said it was normal and that she had painful and irregular periods at the start too. I also had my first period when I was just 10 years old. At 14 my acne became so severe, it pushed me to clinical depression. I didn’t want to leave my room, let alone the house. Broke all the mirrors at my home because I didn’t want to look at my face, to me my face was completely ruined and couldn’t be healed, I wanted to burn my face off with acid. My parents still forced me to go to school and I was extremely bullied for it. My self confidence was completely ruined. I went to a dermatologist and I was on antibiotics for almost a year using other acne topical creams and face washes, with no improvement. My dermatologist at first said it was normal because of hormonal changes as I going through puberty, but as my acne got worse he just kept increasing the dosage and giving me more powerful antibiotics. I then decided to go to a new dermatologist and he was shocked on how long I was taking such a high dosage of a powerful antibiotic, he told me if this didn’t work my last resort was Accutane which has a really long list of side effects. He asked me to take some blood tests and get a Ultrasonogram of my reproductive organs and that’s when we found that I had PCOS. Ge referred me to a gynecologist and I was asked to lose weight because that was the most effective way to keep PCOS in control. I was given birth control pills to regulate my period and to help my acne as well. I lost 30 pounds after that and I’m at a healthy weight now. My acne cleared up after I was done with my Accutane treatment, but sadly the medication spiked up my cholesterol and triglyceride levels. My depression also worsened while I was on the medication and my eyesight deteriorated really fast as well. I’m off from all medications now and I’m at a much healthier place, my period became completely regular and they are less painful now. My skin cleared up and I’m also much more fit.
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  439. This video is so scary. It reminds me of when I was hospitalised with starvation ketoacidosis, plus hyponatraemia and hypokalaemia. I had a lot of trouble eating after major GI surgery. I did go to both my surgeon and a dietician, but they completely dismissed my concerns (and I ended up reporting them to the health practitioner registry agency in my country). I don't remember a lot from that time, but I do remember that the effects on my cognitive function were terrifying. They were the first sign, to me, that I was seriously ill. They made it a lot more difficult to advocate for myself, and after my surgeon and dietician both failed me, I couldn't co-ordinate myself enough to find new specialists to see. I quickly became too sick to think straight or care for myself at all. I've been through some really awful things, but that was the worst time in my life. The muscle cramps were unreal, and they progressed to seizures. I also kept constantly gagging and retching, but I didn't have anything to bring up. Eventually, the gagging actually made it impossible for me to even drink water. I also had this awful sense of impending doom. That's what I remember most vividly. Thankfully I'm okay now. It wasn't a complicated case like the one in the video. I still have some trouble eating, and I'm still struggling to recover from the muscle wasting it caused, but I'm alright. I guess the moral of the story is, don't starve yourself for six weeks. Or maybe don't drink fifty beers a day. This is not something you want to experience.
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  488. Ah, so this is the disease that my doctors told my parents I might have... when I was 8, I got a massive skin rash all over my body. They were big, raised red patches along with some smaller dots. My parents took me to the doctor, and by then I had scratched the rash so much (due to it being INSANELY itchy) that all the rash patches and spots had become purplish due to being bruised from hard constant scratching. They told my parents that if it WAS meningococcimia, I could be dead the next day (not sure why they said that to my parents, all I had was the rash) unless they gave me some sort of injection (probably a medication or antibiotic?). My parents took their advice. They took me into a room, and had my parents hold me down while 4 doctors administered 4 injections at once into my legs. I couldn't walk for an hour afterwards it hurt so bad. And then they told me I needed to have it done again later (can't remember if it was the next day or a week later). When I came back for the second session it was only two injections at once and it didn't hurt anywhere near as badly. I had the skin reaction 3 more times after that and I have tons of skin allergies to this day. After watching this video I am truly not sure why the doctors thought it was meningococcimia, because all I had was that itchy rash. No other symptoms. But maybe it was just risky enough that they didn't want to wait any longer? Not sure how it works. But thanks for this video, I've always wondered what it was that they told my parents I might have.
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  524. I just realized this video is about two months old but at the same time, I had to comment and tell of my hellish experience I found myself having suffered this exact same ER visit almost to the T but from using Aleve. My entire hellish journey began back when I had my first GI bleed back in June of 2022 all the way up til my latest GI bleed on March 2, 2023 or of this month and year. I literally just got released from spending almost two weeks in the hospital in St Louis, MO, to which my partner of 17 years and our 16 year old son actually live in Jefferson City, MO. I never took a whole bottle of Aleve, I only took it when I needed it but I found I'd start depending on it more and more. I went from taking a couple for pain to waking up first thing and taking them BEFORE I even had any pain. Needless to say, I had my first GI bleed on June 1st of 2022 and my hemoglobin level was at 2.7. I was later told a normal hemoglobin is anywhere from 11.9 to 13.7 up to 16. something or other. But my latest and hopefully last visit to the ER for any kind of upper GI bleed concerning me ended up turning into some kind of arterial bleed in my neck because they had to intubate me to see what was causing the bleed I had just went in for. The next thing I knew I woke up and I was in a hospital in St Louis, Missouri. I was just recently released but im not yet able to stay alone by myself just yet so I currently have had to move back home temporarily with my parents because my partner works overnights. But before I could leave the hospital, I had to basically re-learn simple human basics like feeding myself, bathing, or even just getting a drink of water. I'm a fall risk, as well. These rules and warnings printed on these medication bottles are not just put there because they're different for everyone or they're a simple suggestion. They are actual serious rules to follow! When they say not to take so many in a certain amount of time, or if they say to not take them if you're on any blood thinners, PLEASE, listen to them...please. I would HATE for anyone to go through anything like I just went through. I used to be a straight A student back in HS and College, I used to work in the HR Dept of a hospital...Now it seems all my time spent in any hospital setting is far from the HR Dept and most likely spent waiting for test results in the ER Dept.😢😢😢
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  883. Bernard, you really blew me out of the water in my attempts to correct false information given out on a popular TV show regarding Stein-Leventhal Syndrome (P.C.O.S. nowadays, as you know). It's called, "Whitney, Fat Girl Dancing", as far as I know. I don't watch the show but as both a clinician & a patient have watched some of the vlogs gleaned from the show on YT & am trying desperately to rectify some of the nonsense that this woman is spreading about the condition. Whitney's main symptoms are, slight alopecia, a little hirsutism but, as the title would suggest, mainly morbid obesity, which, when one watches what she eats & how much, it is obvious that it's the old story of too many calories consumed & not enough burned. She leads a "dance class" which sounds good but is not a group of obese people really having a good cardiovascular workout but rather music playing whilst they"jiggle" in place. The misinformation arises if Whitney thinks anyone dare think that being so obese is not good for her in the short or long term. She declares to anyone who will listen, "I can't help it, I have P.C.O.S., which means the three 'b's', : balding, bearding & being fat." Since my menarche, I have had just a few menstrual cycles & a transvaginal CT scan revealed, at the time 9 cysts on my right ovary &, too many to count, on my left ovary I have repeatedly explained that, thanks to advances in endocrinology & laser therapy, the "bearded lady" of Victorian circuses & "freak shows" are mainly a thing of the past. In my case, my test results puzzled me as my testosterone levels were "normal". I had an idea: one more test revealed that my "free testosterone levels" were higher, a lot higher than normal!! After a lot of hard work, my BMI is within the "normal" range. The opening statement was a poor attempt at comedy, btw. Thank you again, for another case study :-).
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  1919. This is such an enlightening presentation. It is very thorough and simply explained. Her zebra condition is becoming more recognized as we continue to advance. I have heard on 2-3 occasions the overlap of oncocytoma and chromophobe renal tumors. With that said, I think the hindsight of this presentation overshadows how difficult a diagnosis this clearly was to make. Multiple physicians, generalist and subspecialty, did not find her tumors. Why is an interesting question. I think it's easy to think they just "ignored her," but the reality is likely something pertinent to a morbidity/ mortality conference. Of note regarding imaging to those that think imaging should have happened sooner: Over-imaging is a real consequence. In her case, imaging was definitely valid. However, she had such a rare condition, hitting the lottery has more favorable odds. The only large red flag to me was the very abnormal resting heart rate. That concerned me for auto-immune or tumor. Then again, someone else might say infection. Still, simply imaging without localizing implies there was an obvious place to image. If this was sarcoidosis or lupus, we may consider lung. Carcinoid could be lung or abdomen. Thyroid would be neck. Neurologic masses would be neuro-axis (likely brain). Leukemia would be marrow, which labs would be the initial tip-off before you see abnormal bone findings. The point is, saying "image" without target does no good. If you image the wrong spot, you might be less inclined to image another later. These things always seem easy when all the details are known/ laid out, but hindsight is 20/20. I encourage any thoughtful discussion below, even if in disagreement. This is a good case, and I am glad she is on the positive side of it.
    4
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