Comments by "Piccalilli Pit" (@piccalillipit9211) on "M.E.: Lives devastated - and sufferers told it's made up" video.

IN 2019 I WAS 3/4 THROUGH WRITING A BOOK on how to get in the best shape of your life in your 40's - I was in the best shape I had ever been - VO2MAX of 58 In 2021 I was walking with a stick. ME and Long Covid are ASTONISHINGLY REAL
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The hope is that Long Covid - another post-viral illness - will lead to research in ME. I have Long Covid and it is life-destroying. But research is happening because many important people have it like journalists and solicitors, so it cant be ignored.
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@Rosalee2424 For what its worth I live in Bulgaria and ME and Long Covid are classed the same here as "Post Viral Injury" for want of a better translation.
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I HAVE LONG COVID very similar to ME - Im self employed, I have not been able to work for 3 years, I have gone through all my savings - IT IS MORE REAL THAN YOU COULD EVER IMAGINE People are NOT making it up. TBH - If someone told me how debilitating it was, id be sympathetic but I would not fully believe them without experiencing it. Its a MOLECULAR level exhaustion. I have to lie down still for 10 minutes every hour, have a 1 hour sleep at 2pm JUST to get through the day, not to DO anything, just to live. To go to town I have to "save up" my energy for a week
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I have long covid and I am FULLY aware that its getting attention because important people have it - journalists, solicitors, politicians and their family members etc. I hope that the research for LC can help ME as they are both post-varial illnesses I believe? TBH - If someone told me how debilitating it was, id be sympathetic but I would not fully believe them without experiencing it. Its a MOLECULAR level exhaustion.
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I have LC - I call it "treacle legs" it feels like I am walking through a lake of treacle. I have to lie down still for 10 minutes every hour, have a 1 hour sleep at 2pm JUST to get through the day, not to DO anything, just to live. To go to town I have to "save up" my energy for a week. The ONLY thing that has helped me was to buy a Garmin SQ fitness watch - it has a "body battery" feature that tells you your energy and its freakishly accurate. If I monitor my energy so I dont have a crash I have found that this has made life immeasurably better. Since I got it a year ago the slow decline in my condition has switched to a very slow improvement. To me it seems that avoiding the horrific crashes is the key. But it is a MOLECULAR level exhaustion, like nothing I have ever experienced in my life. I was in the gym 6 days a week in 2019, by 2021 I was walking with a stick. I have aged so much the post office refused to accept my driving licence when I was picking up a package here in Bulgaria cos they say it does not look like me. Im 53 and I am an OLD MAN.
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@matthewoneill4823 Dude - cos we all know 100% you are a dude - medical research IS SEXIST this is just an objective fact. Its not identity politics - for starters its medicine not politics, and its just the truth. Im sorry the truth hurts your delicate man sensitivities but truth is truth - there are as many male victims of abuse as there are females, am I WRONG for calling attention to this??? To the fact that its not taken seriously by society when a man is abused...?
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@Avatar-h8o Like AI taking jobs - its taking important people's jobs this time so its endlessly on the news. No one gave a sh!t when automation was putting working-class people out of jobs. CNN did 220 articles on AI taking jobs in the 4 months after chat GPT was launched. They did 40 articles in the previous 30 years on Industrial automation taking jobs.
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