Comments by "" (@brennadickinson2920) on "The Patient Story" channel.

  1. Seven years from diagnosis and still alive and kicking! Still in treatment, still got low immunity, still able to accept that 'it's one day at a time'. I'm 76 now and getting creaky anyway. I skipped the stem cell transplant as I didn't want to be away from my cat or be cooped up for weeks. Getting worried about the increasing pain in my pelvis lately so probably need a scan, so will follow up on that when I go for treatment next week, so one day at a time.
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  2. It's seven years since my diagnosis. Had three or four different chemo courses with not huge remission. Now I'm on Daratumumab and Dexamethazone (15 months) and enjoying the best I've been in the last seven years. Treatment is every four weeks now so I have about three weeks each month when I don't have to think about Myeloma. Still low immunity so have to avoid crowds (and close physical contact with strangers! Lol!). I rely on humor, swearing and praying to keep me from going into a funk. I have some pain but not bad - I have to find the balance. Don't like the bone marrow biopsy, but it gives me a captive audience for my terrible jokes! Good luck and blessings to my fellow sufferers. MM is all part of my life's rich tapestry so it can be lived with. I have a great team here in the UK, who have supported me all the way. I feel very lucky to still be here. ❤
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  3. I have a blood cancer, Multiple Myeloma (diagnosed 7 years), and fatigue is ever-present.
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  4.  @kathyhenderson8703  CT scan said no sign of MM involvement. So no help except for painkillers which I try to avoid. Wondering what is going on. Always the risk of new cancers. Oh well. Just plodding on and hoping for the best. Thanks for your kind words.
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  5. Daratumumab and Dexamethasone and am stable at a low level. Had one lytic lesion and pain in my pelvis when walking, treated by radiotherapy. I'm 77 soon and and have other health issues too including back injuries and arthritis and trouble walking so I just take it day by day. If you're going to have Myeloma, get a sense of humour and a prayer life and you won't do too bad! I feel very lucky!
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  6. Couldn't agree more. ❤
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  7. Yes, it is a bit of a roller coaster ride. I did my best to deal with only one day at a time.
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  8. Well, it's not really about how many times we feel like giving up, it's about how many times we give it another try. One day at a time and enjoying the little things. I've been at this for eight years now, so feel very blessed and fortunate to have had good treatment and I feel God is on my side, so I try to be on His!
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  9. Ps. Age 76 so I am feeling my age a bit anyway.
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  10.  @Sedgies  Thanks. I trust in the power of Almighty God and my life is in His Hands. ❤
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  11. What about their Hippocratic oath?!
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  12. I think it is possible to live with cancer. My experiences for the last eight years with Myeloma are that even living with cancer is possible with a certain attitude. It's been very engrossing to learn how to live with my mortality, no longer that glorious given of youth, but a sober, measured approach to life, embracing, not fighting off the inevitability. Really living each day. Becoming old is just as interesting and even as fascinating as all the other phases of my life. It's all experience.
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  13. The Dexamethozone given as part of chemo and immuno can cause insomnia and much increased appetite which can lead to huge weight gain and potentially non-alcoholic fatty liver.
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  14. Thanks for this great video. Now I'm on Dara, Dex and side effects meds. Been diagnosed 6 1/2 years, so I feel I'm living successfully with MM. Allergic to Revlimid but did it for a year with anti-histamines. Dara has been spectacularly successful with my lowest ever MM numbers, but I find the Dex more problematic with weight gain and insomnia. Worth it tho'!
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  15.  @annmarie1689  "No way," what?
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  16.  @revroy7526  No. A bit too dodgy at my age, No guaranteed outcome. And weeks in hospital. Didn't want to leave my beloved cat for weeks. Went straight into chemo.
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  17. I found talking about something else was a good distraction. Not quite as bad as the dentist.
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  18.  @CarolBaker-c8v  Somerset.
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  19.  @christinan005  Yes, all sorts, but nothing fatal. Nausea, neuropathy, dehydration. Definitely needed the anti-nausea meds and would recommend taking them routinely as once the vomiting begins it might not be possible to keep tablets down long enough to do any good. It is what it is.
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  20.  @christinan005  Yes. The first rounds were scary as I didn't know what to expect and I started chemo in a heatwave and headed straight into vomiting and dehydration which landed me straight into A&E and a drip. It's been a steep learning curve ever since. It has brought on a series of epiphanies and spiritual realisations, so I no longer feel that having Myeloma is a death sentence, but just another stage in my life. I've learnt that faith, hope and love are not virtues, but necessities of life. Blessings to all on this journey. 🤍💙❤
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  21.  @marywilliams9858  My kind of gal! English, Irish, Scottish, Welsh and a tad of Sioux N American. All four foot eleven too! Lol!
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  22.  @drs2994  Lol! You cheered me up! I expect your mind will be concentrated for a while on these issues, but it has easier periods as we get used to this new reality. Remember to look after your self while you're looking after your dear mother. She'll need you to be in good condition to help her. ❤❤Best love to you both.
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  23.  @rxmw40  Daratumumab and Dexamethasone
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  24.  @mandii9687  Daratumumab and Dexamethasone.
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