Comments by "" (@brennadickinson2920) on "Erin's Multiple Myeloma Story: From Back Pain to a Stage 3 Diagnosis | The Patient Story" video.

Seven years from diagnosis and still alive and kicking! Still in treatment, still got low immunity, still able to accept that 'it's one day at a time'. I'm 76 now and getting creaky anyway. I skipped the stem cell transplant as I didn't want to be away from my cat or be cooped up for weeks. Getting worried about the increasing pain in my pelvis lately so probably need a scan, so will follow up on that when I go for treatment next week, so one day at a time.
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@kathyhenderson8703 CT scan said no sign of MM involvement. So no help except for painkillers which I try to avoid. Wondering what is going on. Always the risk of new cancers. Oh well. Just plodding on and hoping for the best. Thanks for your kind words.
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Daratumumab and Dexamethasone and am stable at a low level. Had one lytic lesion and pain in my pelvis when walking, treated by radiotherapy. I'm 77 soon and and have other health issues too including back injuries and arthritis and trouble walking so I just take it day by day. If you're going to have Myeloma, get a sense of humour and a prayer life and you won't do too bad! I feel very lucky!
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The Dexamethozone given as part of chemo and immuno can cause insomnia and much increased appetite which can lead to huge weight gain and potentially non-alcoholic fatty liver.
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@rxmw40 Daratumumab and Dexamethasone
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@mandii9687 Daratumumab and Dexamethasone.
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